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Marina diagnosed with ME

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:cries: Hope she gets the right treatment now she has been diagnosed

 

Quote

I have a health/ life update I want to share with you all.

After 7 years of health issues, I recently got diagnosed with Chronic Fatigue Syndrome/ ME.

I’ve had symptoms like deep fatigue, numbness, tingling, low appetite, brain fog, rashes, insomnia and a feeling of being ‘poisoned’ for so long it’s been hard to remember what healthy feels like.

My baseline energy has been at 50 - 60% for a long time. Aside from a few periods of remission, the last 7 years have consisted of relying on adrenaline and will power to push me through each day.

Recovery started 2 months ago after an unusually bad flare up that involved shooting pains and burning sensations all over my hands, legs and back. After seeing countless doctors, I started working with a functional medicine practitioner to find the root cause of the symptoms.

After a lot of reading, I now understand that these symptoms are a result of a hypersensitive nervous system, developed in response to chronic stress. My body has felt stuck in “fight or flight” mode and there were many warning signs it gave me before the worst symptoms set in. 

Regardless of the trigger, the key to healing seems to lie in retraining the nervous system to regulate itself again. The happy news is… (!) I am feeling better today than I have in a long time. My energy levels are around 65 - 70% most days and the dips I have are shorter.

Healing is demanding a lot of my energy and attention right now, but the better I feel, the sooner I can get back to my creative life again. I worked for the first time in a while yesterday and it felt so good. 🩷

I am very grateful for the lessons this experience has given me and I KNOW it’s going to change my life for the better! I feel like I have been given the opportunity to rebuild my life from scratch, exactly how I want it to be. 

I’ve also cultivated a deeper empathy for the millions of people who live silently with chronic illness… It’s hard to maintain optimism when the world feels like it’s moving on without you, but hope always exists. Answers always exist. The body wants to heal — and what I’ve learned is that you have to work with it, not against it.

 

https://www.instagram.com/p/CunFXHrPoJB/?img_index=1 (Post won't embed)

My queen :( I am glad she is getting better though! 

She managed to get a body like that while being tired 24/7? I admire her tbh

I wish "Obessions" hitmaker a speedy recovery and that she is able to give us Enjoy Your Life 2.0

1 hour ago, SugarfallB said:

its lyme disease, she should get tested

You've clearly never had lyme disease if you think it's just like this and want to joke about it. My sister almost died from undiagnosed Lyme disease and literally was in bed for weeks.

1 hour ago, SugarfallB said:

its lyme disease, she should get tested

Why would you assume she hasn't :deadvision:

i also have chronic fatigue syndrome or, more likely, long covid and really empathize with the part of invisible chronic illness. hope she is able to recover <3

A friend of works with a research who has been researching ME for decades. This **** is no joke. Hopefully she's able to manage it okay. :frown:

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